Seminar: Facilitating Translational Research using a Dynamic Consent Approach

Seminar
Centre for Stem Cell Systems

Facilitating Translational Research using a Dynamic Consent Approach

WHEN: Tuesday, 11 April 2017, 4.00 - 5.00pm
WHERE: Level 5 Seminar Room, Kenneth Myer Building, Melbourne Brain Centre - 30 Royal Parade Parkville
SPEAKER: Professor Jane Kaye, Melbourne Law School, University of Melbourne and Director of the Centre for Law, Health and Emerging Technologies (HeLEX) at the University of Oxford


ABSTRACT
There are many challenges facing researchers who wish to develop infrastructure and carry out translational research. Well characterised case studies with accompanying samples and clinical information is needed on many different individuals to help us understand the aetiology of common diseases. It is currently difficult to recruit patients and existing research participants into new studies, and to engage patients to carry out self-reported outcomes or to record information gained through smartphones or fitness apps. The aim of this talk is to describe how a Dynamic Consent approach, that uses a digital interface to engage with individuals, might be used for facilitating personalised medicine, biobank and translational research.

BIOGRAPHY
Prof. Jane Kaye DPhil, LLB, Grad Dip Leg, BA is the Director of the Centre for Law, Health and Emerging
Technologies (HeLEX) at the University of Oxford and a Wellcome Trust University Award holder. She obtained her degrees from the Australian National University (BA); University of Melbourne (LLB); and University of Oxford
(DPhil). She was admitted to practice as a solicitor/barrister in 1997 and is a member of the University of Oxford’s
Faculty of Law. She is on a number of international expert committees and scientific advisory boards and has been on the Nuffield Council Bioethics Working Group on Biodata and Rapporteur for the EC Expert Report, Biobanks for Europe - A Challenge for Governance, June 2012. She is also on the editorial boards of Law, Innovation and Technology, of the Journal of Law, Information and Science, of New Genetics & Society and of Life Sciences, Society and Policy. Her team are leading on the Dynamic Consent project and she is one of the leaders in the ELSI 2.0 Global Initiative. Her research focuses on the relationships between law, ethics and the emerging technologies in health. The main focus of her research is on genomics with an emphasis on biobanks, privacy, data-sharing frameworks, global governance and translational research.

Host: A/Prof Megan Munsie
Enquiries: stem-cells@unimelb.edu.au